|
|
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result sql = Family members' experience of familial amyloidotic polyneuropathy disease--an infernal struggle and a fact of life.
Family members' experience of familial amyloidotic polyneuropathy disease--an infernal struggle and a fact of life.char = F;code = 70
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char = I;code = 73
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char = w;code = 119
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char = d;code = 100
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char = w;code = 119
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char = t;code = 116
char = h;code = 104
char = ;code = 32
char = s;code = 115
char = i;code = 105
char = x;code = 120
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char = f;code = 102
char = a;code = 97
char = m;code = 109
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char = m;code = 109
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char = m;code = 109
char = b;code = 98
char = e;code = 101
char = r;code = 114
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char = .;code = 46
char = ;code = 32
char = T;code = 84
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char = e;code = 101
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char = a;code = 97
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char = a;code = 97
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char = y;code = 121
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char = s;code = 115
char = ;code = 32
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char = f;code = 102
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char = d;code = 100
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char = a;code = 97
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char = a;code = 97
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char = i;code = 105
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char = i;code = 105
char = r;code = 114
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char = d;code = 100
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char = C;code = 67
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char = d;code = 100
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char = s;code = 115
char = e;code = 101
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char = /;code = 47
char = >;code = 62
result sql = Familial amyloidotic polyneuropathy is a fatal, hereditary, systemic, progressive amyloidosis. No previous qualitative study of the family members' experience of the disease has been published. The purpose of this phenomenological study was to understand the lived experience of family members whose nearest and dearest suffered from familial amyloidotic polyneuropathy. In-depth interviews were conducted with six family members. The analysis of the data was inspired by Colaizzi's method. Two major theme categories, difficult to accept and forced to accept, emerged from the interviews. Implications for nursing practice, such as genetic counselling and support, are discussed.
char = a;code = 97
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char = e;code = 101
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char = e;code = 101
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result sql = Family members' experience of familial amyloidotic polyneuropathy disease--an infernal struggle and a fact of life.
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char = c;code = 99
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char = l;code = 108
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char = c;code = 99
char = u;code = 117
char = s;code = 115
char = s;code = 115
char = e;code = 101
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char = >;code = 62
result sql = Familial amyloidotic polyneuropathy is a fatal, hereditary, systemic, progressive amyloidosis. No previous qualitative study of the family members' experience of the disease has been published. The purpose of this phenomenological study was to understand the lived experience of family members whose nearest and dearest suffered from familial amyloidotic polyneuropathy. In-depth interviews were conducted with six family members. The analysis of the data was inspired by Colaizzi's method. Two major theme categories, difficult to accept and forced to accept, emerged from the interviews. Implications for nursing practice, such as genetic counselling and support, are discussed.
Publication: J Adv Nurs 2000 Feb ;31(2)::347-53.
Publication Date: 2000 Feb
Study Author(s): Jonsén, E;Athlin, E;Suhr, O B;
Institution: Department of Medicine, Gastroenterology Section, Umeå University Hospital, Umeå, Sweden. [email protected]
Shortcut link to this study:
Publication Date: 2000 Feb
Study Author(s): Jonsén, E;Athlin, E;Suhr, O B;
Institution: Department of Medicine, Gastroenterology Section, Umeå University Hospital, Umeå, Sweden. [email protected]
Shortcut link to this study:
Familial amyloidotic polyneuropathy is a fatal, hereditary, systemic, progressive amyloidosis. No previous qualitative study of the family members' experience of the disease has been published. The purpose of this phenomenological study was to understand the lived experience of family members whose nearest and dearest suffered from familial amyloidotic polyneuropathy. In-depth interviews were conducted with six family members. The analysis of the data was inspired by Colaizzi's method. Two major theme categories, difficult to accept and forced to accept, emerged from the interviews. Implications for nursing practice, such as genetic counselling and support, are discussed.
PMID: 10672092
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